Patient and public involvement (PPI) in clinical research can be defined as

Research that is carried out with or by patients or members of the public instead of to, about, or for them. HRA NHS

It means that patients and members of the public are involved in a research project or initiative as equal partners, for example by:

  • working with research funding organizations to prioritize proposed research projects according to their relevance for those affected by the research
  • providing advice on a specific project as a member of a decision-making body
  • contributing to research information materials by providing feedback on them or helping develop them. 

For more information, please go to Swiss Clinical Trials Organisation (SCTO)

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